Monday, November 21, 2016

Freeing my little songbird

Bright lights, loud tones or noises. Sights that are too overwhelming to focus on, the room and therefore the world has erupted into a spin of frightening chaos and your mind and your body react with fight or flight and in most cases both. You want out, you need to get out, your body can't handle this overstimulation at all. 

And like a caged bird that just wants to be set free from the entrapment that you feel, you begin to thrash around in this cage and fight so very hard to escape so that you can take flight and feel safe and at peace again. And sometimes during your thrashing and flailing around, you get hurt and destroy the inside of the cage and you don't care - you just want to get out so that you can want to breathe and to stop feeling so suffocated and trapped. 

How do I know this? 

Because my sweet little bird, I've watched you go through this so many times and I've tried to help you and free you from this torment and torture. 

My little bird, my daughter Zoey. I watched you have such an experience just recently and it wasn't your first and I know it won't be your last. We did our best to get through it, just like we always do and always will. 

This time it was a new appointment and an evaluation with a new therapist. The door closed and the therapist locked the door and it was as if you were locked in a new unfamiliar cage, with new lights, sounds, smells, and colors all around. 

Fight and Flight commenced immediately! 

I watched as you thrashed and grabbed anything in your way and tore apart this tiny room, my little flightless bird was destroying this little cage and nothing was safe, and neither were you or anyone else who happened to be in the cage with you.

I needed to help you

I grabbed you with my arms around yours and I began to shout lovingly: "Zoey you're ok, you're ok, it's ok, you're safe!"

As I held you in my arms we fell back into 3 oversized "crash pads" and I could hear and feel both of our heartbeats so loudly. We got to our feet and before I could stop you, you quickly picked up a chair and threw it at your captor. 

I sprang into action once more as this bird raged on and this time you were flailing on your back on the floor and I rushed and hovered over you, hugging you tight as you were unable to focus and watched as you continued to scream all while still trying to fly away. 

I hugged you with my arms tightly wrapped around yours and I began to sing

"Wise men say only fools rush in but I can't help"

You focused and you made direct eye contact with me. You, my little songbird looked up at me and sang right back...."falling in love with you."

And then at that moment my little bird was set free. You came back to me. 

This is what my daughter's autism is like. 


  1. Thank you so much for sharing your heartache and joy. I am so glad you have music to help and that she loves the songs and singing to you.
    Tyson has a few words and some sounds, but I've seen him meltdown where the only thing that works to bring him into focus is holding him and singing too. So grateful that music works. I will continue to pray that both of our specials find their voices or other ways to communicate their needs and fears and wants and joys and everything! Hugs.

  2. O wow ... o wow ... you just left me breathless and in awe!!! How absolutely special and something you will never forget!! Just went through the same experience ... new therapist .. new everything ... not nice at all ... quite horrible actually ... but this ... this is something so ... so special!!!

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  4. Hi Melissa- so glad I was able to meet you and Anna at McDonald's the other day and that you told me about your blog. You are a great writer! I can tell we have a lot in common from some of the things I read.
    I hope you get a chance to get in touch with Kaarla Weston of Gilford Golden Gaurdians.
    I know she could help you find a golden doodle to train for Zoey. Also, I know a mom who got her son's pediatrician to give her a (script for) handicap placard because her son would bolt in parking lots. That might be worth asking for. Also, I'm assuming you Zoey must have Medicaid by now. We were recently told to look into social security for our son- not sure if you have yet.
    I look forward to reading more of your blogs and hopefully someday your book(s)!